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Email: information@spuc.org.uk
Huntingdon's Disease Association
This page was created on 15 August 2011 and updated on 16 August 2011. Please send any information you may have about this charity to Anthony Ozimic, either by email to news@spuc.org.uk or post to SPUC HQ. For any older information about this charity or other charities, please see the 2006 edition of SPUC's Charities Bulletin.
The Huntingdon's Disease Association is a charity "which exists to support people affected by the disease and to provide information and advice to professionals whose task it is to support Huntington's disease families." The Association is a member of the Association of Medical Research Charities (AMRC).
A factsheet on the Association's website explains, without ethical comment, how preimplatation genetic diagnosis (PGD) and prenatal screening can be used to detect if an unborn child has the gene for Huntingdon's Disease. It also explains how couples at risk of Huntingdon's disease can use IVF and AID (artificial insemination by donor) to avoid passing on the disease to their children. SPUC comment: By failing to condemn these anti-life practices at the same time as providing practical information about them, the Association is facilitating those practices.
