Cystic Fibrosis (CF) Trust

This page was created on 2 August 2011 and updated on 2 August 2011. Please send any information you may have about this charity to Anthony Ozimic, either by email to news@spuc.org.uk or post to SPUC HQ. For any older information about this charity or other charities, please see the 2006 edition of SPUC's Charities Bulletin.

The Cystic Fibrosis (CF) Trust is a national UK charity which funds research into cystic fibrosis and promotes care for people with cystic fibrosis. It is a member of the Association of Medical Research Charities (AMRC).

The Trust states that it "supports the right of scientists to use human and hybrid embryos in research into life-threatening conditions. However at present we are not funding any research of this nature." In a statement on stem cell research, the Trust stated that it supports "...any research that may ultimately be of benefit to people with CF."

The Trust's FAQ (Frequently Asked Questions) webpage explains the role of various tests to detect unborn children with cystic fibrosis - amniocentesis, chorionic villus sampling (CVS), pre-implantation genetic diagnosis (PGD) and pre-implantation genetic haplotyping. The results of such tests are often triggers for the destruction of human embryos and foetuses.