Evangeline

Evangeline Edwards (pictured with her sister and brothers) was born with a very rare condition called Thrombocytopenia Absent Radius (TAR) syndrome in December 1994. People with TAR syndrome have a blood clotting deficiency, shortened arms and bowed legs.

Evangeline with sister and brothers

Evangeline's parents found out that she had a disability during a routine scan half way through the pregnancy. They were strongly encouraged to consider abortion, which they refused.

Evangeline is now doing very well in a mainstream school. She walks short distances with callipers, and also uses a wheelchair. Life is not always easy for her but she has a lot of friends and enjoys many activities. She is a very bright child, who has always had an inquisitive and determined nature. Sue, her mother, says, "Words will never describe how much we love her."